trisha01

Some have it and some don't... September 24, 2011

by on ‎09-24-2011 06:16 AM

Some have it and some don't...

 

Spousal support, is very important, to many folks with diabetes. It is often discouraging, when they do not have

this much needed diabetes tool, and it can be especially difficult for newly diagnosed folks.

 

It brings to mind, the very first hypo that came to me, once meters were available for testing. My hands were

shaking so hard, that I couldn't pour some juice. My ex was close by, but didn't offer to help - at first. I tested

and was at 39. He poured the juice, I don't remember how much, it's been too many years to remember. I don't

think that we had glucose tabs back then either.

 

Of course, in 1984, when I was diagnosed, the un-needed weight loss of 40 lbs in less than a month,  and the

'pee strips' being blacker than the Ace of Spades -was the dead give away. The vial of urine strips had a color

chart, to which we held the urine strip up to it, for comparison - I think then the wait time was 30 seconds, just as

it still is today. Urine aka pee strips are still available, but are becoming harder to find. Where I lived at the time,

in 1987 thereabouts, was when meters became available for fingerpokes. Think the lancets look huge now? You

should have seen the ones back then!

 

Throughout the years, different husbands same deal - no spousal support. Did it still bother me? Not as much. It

was like asking the husband, to repair something, on the 'honey do list'. I would ask three times, then if it wasn't

done, they lost their chance at repairing whatever it may have been, and I did it myself. I am a hardheaded

stubborn scorpio, independent as h-e-l-l, and still am.

 

Fast forward to the mid '90's. My husband is a wonderful man - even though tempermental, and very firm on

comittment, and his heart is all mine and mine alone. There have been times, when I felt that my diabetes may be

bothering him, and gave him the option to walk away. Nada, no way, he didn't walk. His keeping his word on

everything to everyone, was one of the things that won me over. Besides that, he did the old fashioned

courting, something I had always wanted, but he didn't know that then. Matter of fact, it was six weeks before

he ever even kissed me. How cool was that! :smileyhappy:

 

Although I would like for him to be a little more supportive, it doesn't bother me, that he isn't. Sometimes he'll

measure my food for me, tell me the carb gram count; but he obviously keeps it in the back of his head that I do

need to eat. Every so often, he'll ask me if I've eaten and how long ago? I can go for hours without food, as

long as my Lantus is at the right amount for me. Basal testing really works. He mostly can't tell when I'm hypo,

but then - neither can I. That's why I have a Continuous Glucose Monitor. My alarm just went off, and whoa! 65

with double down arrows. Real Pepsi and a glucose tab were taken just in case. Fingerpokey shows 173 on the

meter. Why the difference in numbers? Lag time on the CGM. It is also the 1/2 hour mark from a snack and a

Novolog injection. Numbers fly up and down, during the first hour or so, after using a rapid acting insulin. The

glucose tab, real soda pop, and my snack, all kicked in together. Ah, seven (7) minutes later, up to 86. Another

seven minutes, it's reading 96, and the fingerpokey is 210. Fun night ahead! Not!

 

At any rate,back to my sweetheart recognizing when I'm hypo. The very first time he recognized me being hypo,

was actually quite comical. I had tested not even five minuted prior to going into his studio, and was at 340 or

so. When I get into his studio, at that time, just 20 feet away from where I tested, who knows how low I was. It

was quick and it was hard. I was really giddy, very unusal for me. It took him a couple of minutes to figure it out.

I think he said then, that my eyes told him something was wrong, along with me being giddy. All at once, he

says, "Open up!" and shoved some spice drops in my mouth and said "Chew them!" It's now another seven

minutes later, cgm is at 76, fingerpokey is 235. Four minutes later, the cgm alarm screams out yet again...now 64,

fingerpokey 245. Oh yeah head, pound the ache all the way. Seven minutes later (cgm reads every 5

minutes)...61 with one down arrow, and fingerpokey is 246. The time frame is 1-1/4 hours after my snack. This

particualr snack does not take me this high afterwards.

 

However, that was just about the only time that he really recognized I was very hypo. I can be in the 20's and

lower, and still function - not all the way, but I can. That is one scarey aspect of having hypos. Having been

diabetic for as long as I have, along with all the other autoimmune issues, diabetic autonomic neuropathy,

reared its ugly head about 8 years ago - that's how long I've been hypo unaware; and since 2008, diabetic

orthostatic hypotension is not any picnic either. It's been 11 minutes now, and cgm shows a 118 with an up

arrow. Fingerpokey is at 250. Ah ha, this new sensor is right on the ball, and will catch up to that 250,

which could be higher or lower, given the + - 20% allowable factor. And he wonders why I stay worn out. A

week or so ago, five hypos in one overnight, according to my cgm reports.

 

While I am on both sides of having spousal support, my husband knows a near crisis situation, and takes

complete control - until I can safely do so. That includes dragging me off to the ER, when I'm so sick that I can't

leave the bed. That time got me an ER admit, to the dialysis floor, for an adrenal vs a kidney situation.

 

My husband may not give the everyday kind of moral support all of the time, but he is right there, when I need

him the most. For me, that is the best kind of moral support, that a spouse can give to me.

 

Well, thankfully, the damn alarm went off again at 0203 ...59 double arrows down...fingerpokey 218. More

glucose tabs and more real soda pop. More real headache. Back up to 95 on cgm at 0214, and fingerpokey is at

213, at 0214.

 

I usually don't treat when the cgm is lower than the fingerpokes. There are times however, when the cgm is right

on the mark to being faster than the fingerpokes. The folks that make these cgms, know that. It also has it in the

manual. I've known it, since having gotten to become quite intimate with my first cgm, and it holds true with the

current cgm. My train of thought is this, if it weren't true, there would not be any predictive alerts. I've also seen

the predictive alerts plus number, and just a few minutes later, see it on the screen where it has turned around

and goes right back up. I believe that there are two kinds of hypos...1.) Bg hypos, and, 2.) Interstital fluid hypos.

 

A quickie funny haha before ending, having been in hypoglycemic coma(s) during the night, I remind my

sweetie every so often, to rouse me if he gets up during the night. He said, "I do check, to see if you are

breathing." "Honey," says I, "Umm, I can still breathe when in a coma. Just make sure that I can respond

verbally to you!". Bless his heart, he still doesn't fully get the whole concept of Type 1 diabetes. KWIM? 

 

© Trisha Leary, September 24, 2011 at 037 central time

Comments
by samlevitt on ‎10-24-2011 01:56 AM

hey trish,

 

i just got married 6 months ago and before i got married me and my husband went on a trip to disney in orlando well we walked around the park alot and it was hott so at one point i got a headache and then i started to feel shaky and dizzy and it was scary i told him i needed something anything so he took an orange and opened it and after a few minutes i felt better so towards then end of the day we left the park and went back to hotel well when we got back i said i wasnt feeling well so i laid down and i told him we should eat something so we stared to and thats when i was even lower than before well i ate some then i fell asleep and when he woke me up he was having to fight with me and shove stuff in me to eat cause i was almost in passing out stae and after i did finally eat or drink what he was giving me i snapped out of it and i was fine but he told me he was just so scared and worried about me so i then explained diabetes and gave him some more tips on what to do and now he wakes me up in the mornings or trys to arouse me and if i am ever that mean to him he tell me to check my sugar and most of the times hes right. you know like you said he there for you when u need him mine is too. i even gave him the chance to leave when we were dating and he said no your crazy. so were both lucky to have our husbands. also i wanted to ask you about kidney promblems cause the doctors have told me that i have hydro nephrosis and i am just worried with me having type 1 it scares me.

by ‎10-24-2011 02:30 AM - edited ‎10-24-2011 02:31 AM

Samantha,

 

Thank you for sharing your story with me. We do have awesome hubby's! :smileyvery-happy:

 

You do carry your meter and strips, don't you? You do carry glucose tabs too, I hope? If not, young lady, you better start doing so. (mother hen here)

 

I'll research hydronephrosis and see what I can find out about it. In the meantime, shoot me a PM and give me a little more info, as to what the doctor said - if you want to. At any rate, I'll send you a PM Monday nite or Tuesday nite. OK? Try not to worry, you should be fine.

 

HUGS!

 

Trisha

by t1wayne on ‎11-01-2011 11:06 PM

Hi Trisha:  I believe Spousal support is essential for diabetics.  And expand that to Family support if they have children.  I'm 56 yo, and have been T1 for 45 yrs.  I have 3 kids - 21, 18 and 16.  While we were dating, my wife learned a great deal about diabetes from me - both by watching and listening (related note: self education about the disease is the first essential to living with it).  The vast majority of T1's have been dealing with the disease for quite some time by the time they are thinking of marriage, and this is a topic they should broach in detail with their prospective mate before making the marriage commitment.  During the course of our 23 yr marriage, my wife has helped me numerous times with low blood sugar episodes ("insulin shock" in the old days).  She's learned to recognise it in me, even when we're sleeping, which is the only time it's an issue for me.  I've always been quite good at recognising it myself when I'm awake, but it sometimes occurs while sleeping.  Maria is so sensitive to it, that she'll wake up, then wake me.  She's leaned to simply give me direct commands to consume a yoohoo (my choice of liquid sugar - the stuff works great! - we keep some on the nightstand) then do a blood test and take appropriate follow on steps.  When my eldest child reached about 13 or 14, we discussed how to deal with me if I showed signs of hypoglycemia (which he'd seen by then); that went on with each of the other two as they reached that age.  Today, I have a support network that is educated about the disease and experienced in helping with hypoglycemic episodes.

 

I would also add an emphasis to your "mother hen" note to Samantha - this is basic.  In my youth, there were no glucose tabs; I carried old-fashioned sugar cubes (they get stale, BTW) in a small plastic bottle at all times.  Blood Glucose meters and strips didn't exist, so I didn't start carrying those until years later (you newbies have it so easy!!).

 

In short, diabetics should not be embarrassed to share their knowledge of their disease with their friends and family, including basic steps to take in case of hypoglycemia.  This could be a life saving step.

 

w.

by on ‎11-06-2011 01:29 AM

Hi Wayne,

 

That's great that you have a very good support team. Not too many of us do have one. Type 1 will always be a self educated deal, and of course, lots of experiments!

 

I still refer to to hypo episodes as "insulin shock", but not all of the time. I think it would have more of an impact on newbies, if we did use the old fashined term, more than what we do now. Some outdated phrases and words are fine, but nothing wrong with many of the old ones.

 

I do so agree on glucose tabs going stale, but instead of going soft, they get even harder! I use mainly real pop, and juice.

 

 I'm not a newbie, by the way. I've got close to 30 years with this. No meters, just pee strips. No glucose tabs (as you mentioned). I didn't even see a meter until about '87 or '88. Time changes things and technology, just as much as diabetes changes constantly.

 

Thanks for stopping by! :smileyhappy:

 

Trisha

About the Author
  • Hi there!, I am much more than my autoimmune diseases. I'm Mom to a daughter and son - both in their early 40's. Wife to my current husband for a long time. And Nana to three wonderful grandsons, one is 19 (and a PFC USMC), one is 17, and one is 9, and they are brothers. As you'll see in my signature, I was born with an autoimmune diabetic kidney disease (64 years ago). Then came Rubella at age 3. How about a little Rheumatic Fever thrown in - not once (age 7), but twice (age 22 or so). Rheumatic Fever is a systemic autoimmune disease -and in my case, is also an inherited one. Vitiligo (also autoimmune) at age 15, keeps my arms in small, lovely shades of no pigment. There have also been spells of adrenal issues through the years. My true love work wise, was specializing in Trauma Radiography, after earning my college degree of A.S. in Radiologic Technology. From the time I was 7, I knew I would work with x-ray stuff. I also tutored radiography students at the college level. Gave inservices to the radiography department(s); and conducted the monthly radiography tours to elementary school age children - using terms understood by those age groups. I was a member, during my working years, of my professional radiographic organizations. Since retiring from radiography, I've worked with wood, and have my own little woodshop biz at home. My volunteer efforts included for domestic violence shelters; nursing homes; and as a teenager, I was a candy striper, and earned that coveted cap after 1000 hours. :smileyhappy: My volunteer efforts now, are devoted to the ADA forums, helping other diabetics, and specifically on the Type 1 forum. I'm also a photographer, hand quilter when I can still see well enough to do tiny stitches, embroidery, crocheting, and learned to sew when I was 9. I loved tennis and bike riding. I also founded and published - three small community weekly and monthly newspapers (tabloid size), of which I was the only person to do all of the work, including layout and paste-up, along with writing the editorials, etc. Before I did my newspapers, twelve of my Letters to the Editor (one letter each month) of the area major newspapers, were published in three newspapers at the same time, of which one became (a 1/2 page in a full size newspaper) a Community Commentary section, on Domestic Abuse. Type 1 Diabetes is a part of my life, but it is not all of my life. ~ Trisha ~ IDDM (Type 1 autoimmune) 30 years