New Idea

I  just came across this below from Wikipedia's talk page on the ADA.  They have a pretty good point...I had never heard about any surgical cure until reading this.  From what I'm gleaned from some internet searches, it appears the remission %'s listed are actually right, which is amazing.  So where has the ADA been?


Controversy over ADA's ignoring of surgical cures

Perhaps there should be a section added discussing the notable silence from the ADA on the 99% long-term remission/cure rate that the BPD-DS surgery (known as the Duodenal Switch) has on type 2 diabetes? In addition, gastric bypass surgery has demonstrated a roughly 50-60% long-term remission rate for type 2 diabetes. One would think the ADA would be screaming from every rooftop to let people know about these findings, but nary a word. Why isn't it plastered all over their website? Where is the ADA's educational campaign to get out the word about surgical cures -- to save lives, extend lifespan, and improve quality of life for those afflicted with type 2 diabetes? Why is it that only a pharmaceutical industry pill can be considered a "real" cure for adult-onset diabetes? It is highly doubtful that any prescription drug in the next century will come remotely close to the across-the-board resolution of diabesity-related health problems that these two bariatric surgeries currently deliver, yet everyone is supposed to keep waiting and hoping for the impossible? Could it be that the ADA doesn't want anything to potentially encroach on their turf or impede their fundraising -- what is the reason? In any case, it would seem relevant to note in the article how the ADA has been notably silent on these (pretty stunning) findings, to the point that the public at large doesn't even know about the existence of surgical options.

moonlight58

Food Journal

Status: Implemented
by moonlight58 on ‎10-17-2011 11:16 PM

I think it would be really helpful to have a food journal within our community where we could log everything we eat (accountability matters!), and be able to count calories and/or carbs. Not sure what that would entail, as i am fairly new, but i personally would love it! :smileyhappy:  www.livestrong.com just doesn't have what i need anymore since finding out i'm diabetic. It would be nice to know if i'm close to being "on track" with my carbs, and being able to see in black and white what i've eaten and had to drink would be awesome (without having to use more than one food journal).
Just sayin'....   :smileywink:

 

Thanks,

Moonlight58

Status: Implemented
Changing this status because, as James mentioned, we have this in place! Thank you for the suggestion and the response.
lisamit

Aspartame Disappointed with ADA

Status: Archived
by lisamit on ‎02-05-2013 09:49 AM

I was diagnosed with Diabetes in September.  Therefore, one of my various areas I have used as a research tool is this website.  Afterall, who would you think knows more about managing Diabetes than the "American Diabetes Association.  Well I am very disappointed!  It says on this website that you can drink diet sodas.  I have been drinking a diet rootbeer at night with crushed ice to help relieve the desire for that late night munchy.  I had noticed that my glucose levels seem to be higher the next morning when this was my alternative.  So last night, after dinner, I checked my glucose level in one hour.  During the second hour I had a diet rootbeer on ice.  When I re-checked,at the next hour interval, my glucose level, low and behold, had increased.  So this morning I did some research and found that there have been several studies on consuming Aspartame and diabetes.  I was shocked to find that all of these studies say that a diabetic SHOULD NOT consume anything with this sweetner as the result is, what I seen last night, increase your glucose levels.  These studies reveal in great detail how Aspartame affects glucose levels, kidney functions, and many other heatlh concerns. 

 

I am very disappointed that within the American Diabese Association I was misled.  Because, I believe most diabetics truly rely greatly on the information found on this site is the most correct.  I am imploring that you organization please make sure that the information given is, just that, the most correct and up-to-date.

Status: Archived
dgum711

Telemarketing

Status: New Idea
by dgum711 on ‎06-21-2012 02:46 PM

This is more about ADA, not diabetes.org, but I think important to the reputation and credibility of both. Why must an organization that does so much good, and is so well-respected, resort to constant, annoying telemarketing calls? Every day, sometimes twice a day, your telemarketers call (or should I say "the autodialer" calls). When I finally did pick up, after a delay, a person came on the line and then promptly hung up. This type of crass fund-raising is unbefitting of an organization of ADA's stature. Make it stop, or many more like me will redirect our charitable giving elsewhere!

pbruno1

Separate Login Page

Status: New Idea
by pbruno1 on ‎04-20-2012 08:43 AM

When we login, it looks like the page is a generic page where others like patients can access content also.  The page is SO busy.  Can this be changed to be less confusing?  Just an idea....

Status: New Idea
mhcarrs

shopping and food labels

Status: Under Consideration
by on ‎02-22-2012 01:40 PM

How about a video trip to a grocery store explaining label reading?

Status: Under Consideration
I like this suggestion, as well! Will pass it along to our nutrition team.
lovebios

Experiences section

Status: New Idea
by lovebios on ‎12-01-2011 12:48 AM

I have an undeveloped idea that might help those new to diabetes.

I read the board versus searching for anything, so I may not know how the search feature really works.  

My thought is to create an "experiences" section.  Instead of the focus being a topic, it would be an interesting or helpful experience or thought regarding that topic.  On the main board, we would usually see: "Why are my blood sugars going crazy?" , but in the experience section, it might be "Metformin - How much I needed to get control", "Insulin - the dangers my doctors never told me about", or "Atkins - Monitor blood sugar closely".  I'm thinking of small, autobiographical events that may help someone who searches that first key word; I'm picturing a type of library.

 

When I knew almost nothing except the words and terms my doctor used regarding diabetes, it was overwhelming!  All this new information, that sounded so clinical, just blended together.  It wasn't until I started hearing other people's experiences that it became understandable.  The facts and thoughts from another person's story, describing how is it similar or different to what I was experiencing, how long it took for results, did they think the benefit outweighed the risk, or what were things they would they do differently, all expanded my frame of reference beyond what the doctor said.  Let's face it - most doctors don't have personal experience with diabetes, and for legal reasons, couldn't share anything outside of the usual medical response.  The ways we tweaked various things to make them work, and when we decided to give up on other ideas, products, meds, etc., are all good for increasing our understanding while we spend time on the main board discussing current issues and situations.

 

I hope this will help.  Best wishes and Happy Holidays!

There are many grandparents out here who love and cherish our grandchildren.  It is so difficult for our children with a newly diagnosed type 1 child, to manage all that needs to be done, there doesn't seem time enough to make sure the family unity  stays intact.  A section like this may be helpful to us to know HOW to help without being in the way, but still maintain the unique relationship of that child and his grandparents.

0 High Fives
mipatel

Allow access to forum from homepage

Status: New Idea
by mipatel on ‎01-09-2014 10:39 AM

Since the site re-design, you can no longer access the forum from the homepage.  you have to go into one of the subsections before you get that option.  it's incredibly annoying.

0 High Fives
lecloe

Community Forums

Status: New Idea
by on ‎12-18-2013 11:39 AM

I'd like to see you post information on the Community Forums on Facebook.  Many people are unaware of these forums and how useful they are.  They are a great place to learn and interact with other diabetics.  I use them every day.

 

Thanks for all you do for diabetics,

 

Lyndol

0 High Fives

Your looking for ideas to improve Diabetes.org so I have a reccomendation. When you enter the Site, you have options to click on:

Adults Living with Type 1 Diabetes, Adults Living with Type 2 Diabetes, Recently Diagnosed, The Place for Parents and I Love someone with Diabetes.

I think Hypoglycemia, Gestational Diabetes & Pre Diabetes would be great additions to the choices of Forums to enter into. There are many people that have those types yet no Forum choices are available.

0 High Fives
2sweet2eat

Risk Test: Culturally Competent

Status: Under Consideration
by 2sweet2eat on ‎10-11-2013 04:32 PM

Hello,

 

I had difficulty with the Risk Test due to two of the questions.

 

I am adopted but I was forced to choose whether my mother/father has/had diabetes. I have no way to know that. Maybe adopted or unknown should be an option.

 

Also, I am biracial. In this society, we have many multiracial, mulitethnic people. Why are we forced to choose one race? Please allow the race section to allow for multiple choices.

 

Just my two cents.

 

Thank you!

0 High Fives

I am a dietitian, and I am very disappointed that ADA has not updated the website to reflect the most up-to-date evidence-based recommendations on saturated fats and heart disease.  I agree that trans fats are very harmful in regard to heart health, but saturated fats have recently been exonerated as a cause of heart disease based on a large body of scientific literature.  It is very important that organizations like the ADA remain current and provide the best possible evidence-based advice to the public.  According to the scientific literature, saturated fat is not only harmless in terms of cardiovascular health, but it may even be cardioprotective in terms of decreasing risk of stroke and improving cholesterol particle size, according to several studies.  Foods high in saturated fat are also the best sources of largely underconsumed nutrients including vitamin A, D, and K2, which are all important in terms of heart health.  Encouraging those with diabetes to more liberally consume foods containing saturated fat can be extremely beneficial in helping them to reduce their intake of carbohydrate, leading to improved glycemic control.  Decreasing carbohydrate intake is very difficult when following a low fat diet because fat calories are often displaced by carbohydrate calories. 

I implore the ADA to stay current and encourage patients to take advantage of the most up-to-date scientific recommendations in promoting health and longevity.  Thank you for considering my comments. 

 

Angela Larson, MS, RD, LD

0 High Fives
realistic

This has saved my live

Status: New Idea
by realistic on ‎08-24-2013 05:28 PM

I'm not sure if an of your doctors have told you about. I find many of my diabetic friends have never heard of this but it's available to all of us I'm talking about a Dexcom constant monitoring system. It will alarm you of preset highs and lows. No wires, just select a spot and an independent small cell phone size reader will monitor you. Ideal if you tend to gets lows while you sleep, this will wake you by it's alarm. Can save your life. Ask you doctor about it....it's saved mine

0 High Fives

Need a search for the answer archives of the "Ask the Expert" section at http://www.diabetes.org/living-with-diabetes/treatment-and-care/ask-the-expert/

Status: Under Consideration
Thank you for the suggestion!
0 High Fives
roxanns52

Improving My Food Advisor

Status: Under Consideration
by roxanns52 on ‎08-12-2013 01:40 PM

 When my husband was recently diagnosed as diabetic, I began a search for tools I could use to help in his meal choices. I was so glad to find My Food Advisor! It has made us both see how food combinations effect blood sugar levels. One thing that would improve the site would be to add gluten free combinations, ei sorghum, teff, quinoa, millet, and rice flours or at least make it possible for the subscriber to add certain items that they use frequently. I was surprised to see that cassava root was on the list of foods but not tapioca flour. By adding gluten free ingredients, those who are wheat sensitive or celiac would be able to use the site as well!! Thank You for creating this tool! 

Status: Under Consideration
Thank you for your feedback!
0 High Fives
artqween

free diabetes 30 day cookbook.. request

Status: Archived
by artqween on ‎07-31-2013 07:14 AM

I have seen it online.. and I am interested.. I am over weight.   I have also took a free online diabetes screening..

and was pre diabetes because of my weight.. unfort.ly.. my weekness is diet mountain dew..  however, I am

nervous of the sweeter it has it.. asper.. something I can't pronouce it.  I love the drink however, I tried to contact

them with no success.. on them changing the sweeter to a more healthy sweeter to promote a healthy and tasty

beverage experience?  I also love fried chicken and chicken and beef burrittoos,..  I also love pastres with cheese

and strawberries.  However,  I am also aware of the sugar content in my fav.  desserts.  "bummer".   

Requesting how to be able to adjust them in your awesome above cookbook.. please please please...

thanx..  

artqween

Status: Archived
Thank, James. Yes, anyone can visit shopdiabetes.org to browse and purchase cookbooks offered by the Association.
0 High Fives
joelp142

Ad Campaign

Status: New Idea
by joelp142 on ‎07-18-2013 10:51 AM

 

 

This ad is so disturbing.   I cant believe you would go this direction.

 

I have a child with diabetes and this type of scare crap is aweful.

 

I have given a lot to ADA and am done. 

 

You should be ashamed.

 

Joel

 

 

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0 High Fives
kf6bka

Blog Space

Status: New Idea
by kf6bka ‎06-19-2013 11:42 AM - edited ‎06-19-2013 11:43 AM

This may have been suggested (or even available) but I'm new to the site. How bout a place to write personal blogs of the challenges, successes, and failures of the members. Weatherunderground.com does something similar.

 

Just a thought

 

-Rich

0 High Fives
anaya14

Improving diabetes.org

Status: Clarification Requested
by anaya14 on ‎05-10-2013 11:43 PM

Well can someone explain this website it's kind of confusing, and make it a virtual website like smallworlds, tweeter and m:smileytongue:

Spoiler
 
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