I just came across this below from Wikipedia's talk page on the ADA. They have a pretty good point...I had never heard about any surgical cure until reading this. From what I'm gleaned from some internet searches, it appears the remission %'s listed are actually right, which is amazing. So where has the ADA been?
Controversy over ADA's ignoring of surgical cures
Perhaps there should be a section added discussing the notable silence from the ADA on the 99% long-term remission/cure rate that the BPD-DS surgery (known as the Duodenal Switch) has on type 2 diabetes? In addition, gastric bypass surgery has demonstrated a roughly 50-60% long-term remission rate for type 2 diabetes. One would think the ADA would be screaming from every rooftop to let people know about these findings, but nary a word. Why isn't it plastered all over their website? Where is the ADA's educational campaign to get out the word about surgical cures -- to save lives, extend lifespan, and improve quality of life for those afflicted with type 2 diabetes? Why is it that only a pharmaceutical industry pill can be considered a "real" cure for adult-onset diabetes? It is highly doubtful that any prescription drug in the next century will come remotely close to the across-the-board resolution of diabesity-related health problems that these two bariatric surgeries currently deliver, yet everyone is supposed to keep waiting and hoping for the impossible? Could it be that the ADA doesn't want anything to potentially encroach on their turf or impede their fundraising -- what is the reason? In any case, it would seem relevant to note in the article how the ADA has been notably silent on these (pretty stunning) findings, to the point that the public at large doesn't even know about the existence of surgical options.
This is more about ADA, not diabetes.org, but I think important to the reputation and credibility of both. Why must an organization that does so much good, and is so well-respected, resort to constant, annoying telemarketing calls? Every day, sometimes twice a day, your telemarketers call (or should I say "the autodialer" calls). When I finally did pick up, after a delay, a person came on the line and then promptly hung up. This type of crass fund-raising is unbefitting of an organization of ADA's stature. Make it stop, or many more like me will redirect our charitable giving elsewhere!
I think it would be really helpful to have a food journal within our community where we could log everything we eat (accountability matters!), and be able to count calories and/or carbs. Not sure what that would entail, as i am fairly new, but i personally would love it! www.livestrong.com just doesn't have what i need anymore since finding out i'm diabetic. It would be nice to know if i'm close to being "on track" with my carbs, and being able to see in black and white what i've eaten and had to drink would be awesome (without having to use more than one food journal).
I have an undeveloped idea that might help those new to diabetes.
I read the board versus searching for anything, so I may not know how the search feature really works.
My thought is to create an "experiences" section. Instead of the focus being a topic, it would be an interesting or helpful experience or thought regarding that topic. On the main board, we would usually see: "Why are my blood sugars going crazy?" , but in the experience section, it might be "Metformin - How much I needed to get control", "Insulin - the dangers my doctors never told me about", or "Atkins - Monitor blood sugar closely". I'm thinking of small, autobiographical events that may help someone who searches that first key word; I'm picturing a type of library.
When I knew almost nothing except the words and terms my doctor used regarding diabetes, it was overwhelming! All this new information, that sounded so clinical, just blended together. It wasn't until I started hearing other people's experiences that it became understandable. The facts and thoughts from another person's story, describing how is it similar or different to what I was experiencing, how long it took for results, did they think the benefit outweighed the risk, or what were things they would they do differently, all expanded my frame of reference beyond what the doctor said. Let's face it - most doctors don't have personal experience with diabetes, and for legal reasons, couldn't share anything outside of the usual medical response. The ways we tweaked various things to make them work, and when we decided to give up on other ideas, products, meds, etc., are all good for increasing our understanding while we spend time on the main board discussing current issues and situations.
I hope this will help. Best wishes and Happy Holidays!
I was diagnosed with Diabetes in September. Therefore, one of my various areas I have used as a research tool is this website. Afterall, who would you think knows more about managing Diabetes than the "American Diabetes Association. Well I am very disappointed! It says on this website that you can drink diet sodas. I have been drinking a diet rootbeer at night with crushed ice to help relieve the desire for that late night munchy. I had noticed that my glucose levels seem to be higher the next morning when this was my alternative. So last night, after dinner, I checked my glucose level in one hour. During the second hour I had a diet rootbeer on ice. When I re-checked,at the next hour interval, my glucose level, low and behold, had increased. So this morning I did some research and found that there have been several studies on consuming Aspartame and diabetes. I was shocked to find that all of these studies say that a diabetic SHOULD NOT consume anything with this sweetner as the result is, what I seen last night, increase your glucose levels. These studies reveal in great detail how Aspartame affects glucose levels, kidney functions, and many other heatlh concerns.
I am very disappointed that within the American Diabese Association I was misled. Because, I believe most diabetics truly rely greatly on the information found on this site is the most correct. I am imploring that you organization please make sure that the information given is, just that, the most correct and up-to-date.
There are many grandparents out here who love and cherish our grandchildren. It is so difficult for our children with a newly diagnosed type 1 child, to manage all that needs to be done, there doesn't seem time enough to make sure the family unity stays intact. A section like this may be helpful to us to know HOW to help without being in the way, but still maintain the unique relationship of that child and his grandparents.
I did not have Medicare Part D the last 2 years. I was taking Metanx for neuropathy when it appeared in both legs. I no longer have neuropathy, but Metanx is not covered under Medicare Part D. Adding Part D is a hardship since some meds were discounted or free due to my income. I now am paying a penalty for "as long as I have Medicare"--that may be 30 more years in addition to paying a premium which is the equivalent of 1 month's income and paying more for meds. I had a pharmacist from CVS Caremark look for alternatives. He found a few but none of them were covered. Metanx also helped my major mood disorder. It is a fact that diabetics and people with mental illnesses have nutritional deficiencies. Is there anyway to get nutritional cures preferred over chemical ones, or is the pharmaceutical industry to blame?
I just logged on to make a donation in memory of someone who recently lost his life to diabetes. The page is extremely confusing in how to list the information. I chose to have a card mailed to the family, but it was very unclear what to write where. There was a space to write a heading (what is this?) and a message. I didn't know exactly what to write in the message area because I didn't know what was already going to be printed on the card. You had a button to press to see a preview for an email message but not one for a mailed message. Why not?
I previously made a donation to the American Cancer Society, and everything was very simple and straightforward there. They had a copy of the card that was going to be sent so that I knew exactly what it would look like. All I had to do was fill in the blanks. Not so with your system. In fact, I was so distraught over the whole thing that I canceled the donation entirely. Not until after deciding that there was no other charity to donate to, I reluctantly tried again and submitted the donation not having any idea how it would look to the recipients. I hope it had the message I wanted to send and not any repeated information.
You may think this is silly to worry over, but it is important to me that such important matters as memorials are handled in a dignified and straightforward manner with no confusion.
Thanks for reading this, and please try to reformat your system.
I'd like to see you post information on the Community Forums on Facebook. Many people are unaware of these forums and how useful they are. They are a great place to learn and interact with other diabetics. I use them every day.
Thanks for all you do for diabetics,
Your looking for ideas to improve Diabetes.org so I have a reccomendation. When you enter the Site, you have options to click on:
Adults Living with Type 1 Diabetes, Adults Living with Type 2 Diabetes, Recently Diagnosed, The Place for Parents and I Love someone with Diabetes.
I think Hypoglycemia, Gestational Diabetes & Pre Diabetes would be great additions to the choices of Forums to enter into. There are many people that have those types yet no Forum choices are available.
I had difficulty with the Risk Test due to two of the questions.
I am adopted but I was forced to choose whether my mother/father has/had diabetes. I have no way to know that. Maybe adopted or unknown should be an option.
Also, I am biracial. In this society, we have many multiracial, mulitethnic people. Why are we forced to choose one race? Please allow the race section to allow for multiple choices.
Just my two cents.
I am a dietitian, and I am very disappointed that ADA has not updated the website to reflect the most up-to-date evidence-based recommendations on saturated fats and heart disease. I agree that trans fats are very harmful in regard to heart health, but saturated fats have recently been exonerated as a cause of heart disease based on a large body of scientific literature. It is very important that organizations like the ADA remain current and provide the best possible evidence-based advice to the public. According to the scientific literature, saturated fat is not only harmless in terms of cardiovascular health, but it may even be cardioprotective in terms of decreasing risk of stroke and improving cholesterol particle size, according to several studies. Foods high in saturated fat are also the best sources of largely underconsumed nutrients including vitamin A, D, and K2, which are all important in terms of heart health. Encouraging those with diabetes to more liberally consume foods containing saturated fat can be extremely beneficial in helping them to reduce their intake of carbohydrate, leading to improved glycemic control. Decreasing carbohydrate intake is very difficult when following a low fat diet because fat calories are often displaced by carbohydrate calories.
I implore the ADA to stay current and encourage patients to take advantage of the most up-to-date scientific recommendations in promoting health and longevity. Thank you for considering my comments.
Angela Larson, MS, RD, LD
I'm not sure if an of your doctors have told you about. I find many of my diabetic friends have never heard of this but it's available to all of us I'm talking about a Dexcom constant monitoring system. It will alarm you of preset highs and lows. No wires, just select a spot and an independent small cell phone size reader will monitor you. Ideal if you tend to gets lows while you sleep, this will wake you by it's alarm. Can save your life. Ask you doctor about it....it's saved mine
Need a search for the answer archives of the "Ask the Expert" section at http://www.diabetes.org/living-with-diabetes/treat
When my husband was recently diagnosed as diabetic, I began a search for tools I could use to help in his meal choices. I was so glad to find My Food Advisor! It has made us both see how food combinations effect blood sugar levels. One thing that would improve the site would be to add gluten free combinations, ei sorghum, teff, quinoa, millet, and rice flours or at least make it possible for the subscriber to add certain items that they use frequently. I was surprised to see that cassava root was on the list of foods but not tapioca flour. By adding gluten free ingredients, those who are wheat sensitive or celiac would be able to use the site as well!! Thank You for creating this tool!
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