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Discourage d!!
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04-13-2012 04:36 PM
Hi Everyone,
I feel discourage and very alone. I have been having trouble with lows lately and don't know what to do. I was switched from Lantus to Levimire and have also lowered my dose. I am taking 6 units in the morning and 4 at night and have found if I lower either dose anymore my numbers run high. I take Humalog at dinner because this is usually my biggest meal of the day. I am also going low during the night, the few times I have been able to wake up and test I have been at 60. I am only feeling/noticing about half of my lows. My doctor told me that maybe my symptons have changed and to try to figure it out. To make it even worse is when I am told by family that I am obviously doing something wrong or otherwise I would not have lows!! I am also not "trusted" to watch my 7 yr old nephew any longer because I'm not in "control" and they don't want him to have to "deal" with me going low! He is the only one who has taken any interest in learning about my diabetes and what I need to eat/drink when I have a low. I guess I just needed to vent.
Kelly
Re: Discourage d!!
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04-13-2012 05:27 PM
Many of us find insulin works better in warmer weather. It's good you've already lowered your basal insulin.
Do you also use a bolus insulin for meals? Those ratios might also need to be adjusted so that you are taking less insulin?
Diagnosed Type 1 at age 16 months, over 44 years now
Minimed pump and cgm since July '09
I have traveled cross country, and to Canada, UK, Kenya, Equador/Galapagos islands, and lived in Egypt for a year.
Re: Discourage d!!
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04-14-2012 08:56 AM - edited 04-14-2012 08:58 AM
I agree with Pam -- your Humalog at dinner (from your insulin to carb ratio) might be too high -- in fact, it probably is if you think the PM basal dose of 4 units of Levemir is right and if lowering makes you out of your desired range. I'd focus on dinner -- what you're eating and the carbs count in relation to your bolus. If you're "unaware" of your lows, you have "hypoglycemic unawareness" and once you eliminate the lows for (usually) 4-6 weeks, the symptoms will return. There are a myriad of symptoms and they fall all over a wide spectrum of intensity and in my experience, they change many times throughout our lives. While you're experiencing hypoglycemic unawareness, it's crucial that you test very often.
Emotionally - you've touched on a subject for which I must admit I have very little patience and I feel your frustration! I'm guessing from your screen name you're about 21? I think it's time for you to have an adult conversation with your family. I cannot tell you how much it has ticked me off throughout my lifetime when people want to correlate hypos with being "out of control". These are the same people who have no idea -- and thus say absolutely nothing -- when bgs run high enough to cause complications down the line, yet are not high enough to interrupt thier healthy lives!!! It's an ignorant judgment. I once went on an all-day bicycle ride and listened to a relative whisper that I must be out of control because I needed some OJ and a stop to recover. OMG this subject makes me mad because I completely empathize with you, Kelly.
Once your symptoms come back and you can talk to your nephew's parents about what you do and how you do it to treat your lows -- I would hope they love the time you and your nephew spend together. We have a 21 year old T1 friend who regularly cares for her toddler-aged brother. Many of us here are mothers and fathers. We certainly have been with our children and taken responsible care of ourselves during lows. Glad you vented here. Good luck with all of it. Keep us posted.
MDI ~ Levemir Flexpen & Humalog Kwikpen
Re: Discourage d!!
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04-14-2012 07:42 PM
Pam01 wrote:Many of us find insulin works better in warmer weather. It's good you've already lowered your basal insulin.
Do you also use a bolus insulin for meals? Those ratios might also need to be adjusted so that you are taking less insulin?
Hi Pam,
I read a post about the insulin and warm weather, I think it may have been from Trisha. At the moment I only bolus for dinner because this is usally my biggest meal of the day. It usually ends up being 2 units and on rare occasions 3 units. Yesterday before dinner I tested and was at 69. I thought not bad I will eat 1 glucose tablet and that should do it. I tested 15 minutes later and was at 64! I had a juice box and that got me up to 73. I think I may try to lower my morning levimire to 5 and see if that works.
Thank you,
Kelly
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04-14-2012 08:13 PM
Coastal1 wrote:I agree with Pam -- your Humalog at dinner (from your insulin to carb ratio) might be too high -- in fact, it probably is if you think the PM basal dose of 4 units of Levemir is right and if lowering makes you out of your desired range. I'd focus on dinner -- what you're eating and the carbs count in relation to your bolus. If you're "unaware" of your lows, you have "hypoglycemic unawareness" and once you eliminate the lows for (usually) 4-6 weeks, the symptoms will return. There are a myriad of symptoms and they fall all over a wide spectrum of intensity and in my experience, they change many times throughout our lives. While you're experiencing hypoglycemic unawareness, it's crucial that you test very often.
Emotionally - you've touched on a subject for which I must admit I have very little patience and I feel your frustration! I'm guessing from your screen name you're about 21? I think it's time for you to have an adult conversation with your family. I cannot tell you how much it has ticked me off throughout my lifetime when people want to correlate hypos with being "out of control". These are the same people who have no idea -- and thus say absolutely nothing -- when bgs run high enough to cause complications down the line, yet are not high enough to interrupt thier healthy lives!!! It's an ignorant judgment. I once went on an all-day bicycle ride and listened to a relative whisper that I must be out of control because I needed some OJ and a stop to recover. OMG this subject makes me mad because I completely empathize with you, Kelly.
Once your symptoms come back and you can talk to your nephew's parents about what you do and how you do it to treat your lows -- I would hope they love the time you and your nephew spend together. We have a 21 year old T1 friend who regularly cares for her toddler-aged brother. Many of us here are mothers and fathers. We certainly have been with our children and taken responsible care of ourselves during lows. Glad you vented here. Good luck with all of it. Keep us posted.
Hi Coastal,
I usually eat a low carb diet so my humalog dose usually works out to be 2 - 3 units, usually 2. So, the key to feeling my symptoms again is not to have any lows for about 4-6 weeks, that is a problem because I am usually having at least 1 low a day or every other day. I have thought of running a little on the high side to see if that would work. I am finally more comfortable trying to tweek my dose on my own.
I am actually 43, but wish I was 21!
I had a discussion today with my younger brother since we share a house. I wrote down some info such as what and how much I'm taking, symtoms of lows and highs, and what to do if I need help. So, I guess I need to educate the rest of the family and friends I spend time with. I had a low at Easter and the one person who knew (because of my juice box) was my nephew. He asked if I was good, I said yes and he went about his business. If anyone else knew they might have caused a rucus!
I know that my family cares and worries, but I am responsible when I am with him. I test and have what I need if I go low and if I don't feel right I tell them and I make the decision not to be home alone with him. Being told I'm a "bad" diabetic by people who are not educated about diabetes just makes me crazy!! So, I have started my education plan and will implement it this week.
Kelly
Re: Discourage d!!
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04-15-2012 08:00 AM - edited 04-15-2012 08:01 AM
Oops on the age, Kelly. Mea Culpa. Yeah, to be 21 again. Or maybe not...every year of life has its own unique challenges...and I thought 21 was tough. There was that one night drinking mai tai's on the San Francisco wharf on New Year's Eve....okay, not a good story. Maybe we should start a thread called biggest lessons learned...
Good luck with the family. You've found the right place (obviously) to vent about stuff like that. I for one, certainly get it.
Speaking only for myself, when I have more than a few lows that aren't trending (I can't figure out the connection between them or the common cause) I pull the nose of my plane up a bit and run slightly higher numbers. One of the simple rules I use, is that the first thing you want to do when you've been feeling out of control is completely eliminate the lows. Then you can go in and "scrub" what you're doing with the basal, the carbs count and the correction doses.
Whatever and however you decide to tweak things it sounds like you're well organized and on a good track.
MDI ~ Levemir Flexpen & Humalog Kwikpen
Re: Discourage d!!
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04-15-2012 12:06 PM - edited 04-15-2012 12:07 PM
Kelly,
Since you were minor hypo before dinner, it is your long acting insulin. It is good that you decreased it. Don't make any more changes, though, until 3 days have passed. It takes that long, to see what 1 unit or the amount you decreased by, does.
The warm weather can and usually will affect it, as well. Those kind of lows will generally come at any time. The more active you are, or the longer you are outside and in the sunlight, changes will again have to be made. Eat more carbs, reduce the fast acting, or both. Meal time insulin can be adjusted without waiting three days.
I took the grandsons to ball practice yesterday, and sat in that hot sun for almost three hours. My cgm alarms were going off all night long. That was even with doing more carbs and decreasing the rapid acting insulin.
BTW, you didn't do anything wrong. It's all part of being 'betic.
Trisha
Trisha
IDDM (Type 1 Autoimmune) 30 years ~ Currently using MDI & Minimed CGM ~
Check out my diabetes blog!
All brittle means, is that one has great fluctuations, which is pretty much hallmark for Type 1's. Some more so than others.- me
First light brings a new day, new hope, new wisdom, and a chance to start fresh again.- me
~ New Type 1 Info ~ Insulin, Test Strips, Lancets, and Pump Supplies Help ~ Kidney Damage Info ~
Re: Discourage d!!
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04-16-2012 09:44 AM
Hi Trisha,
trisha01 wrote:
Kelly,
Since you were minor hypo before dinner, it is your long acting insulin. It is good that you decreased it. Don't make any more changes, though, until 3 days have passed. It takes that long, to see what 1 unit or the amount you decreased by, does.
The warm weather can and usually will affect it, as well. Those kind of lows will generally come at any time. The more active you are, or the longer you are outside and in the sunlight, changes will again have to be made. Eat more carbs, reduce the fast acting, or both. Meal time insulin can be adjusted without waiting three days.
I took the grandsons to ball practice yesterday, and sat in that hot sun for almost three hours. My cgm alarms were going off all night long. That was even with doing more carbs and decreasing the rapid acting insulin.
BTW, you didn't do anything wrong. It's all part of being 'betic.
Trisha
Thank you for the info! I did not realize that it takes 3 days to know how a decrease in the basal insulin will work. I saw a post about the warm weather so I was aware of that, but how do you know if you are just hot or low? Do you test while outside? I was working in the yard yesterday (weeding) and was sweating and hot, when I stood up I got dizzy and thought I stood up too fast, then I started shaking and came in to test. I was at 53. I did bump up my carb intake yesterday and took only 1 unit of my Humalog at dinner, but still had trouble keeping up my numbers.
Even though it's "all part of being betic", it is so fustrating! I really hate feeling like a ping pong ball! ![]()
Thank you,
Kelly
Re: Discourage d!!
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04-16-2012 02:02 PM
Blueyees91 wrote:
Hi Trisha,
trisha01 wrote:
Kelly,
Since you were minor hypo before dinner, it is your long acting insulin. It is good that you decreased it. Don't make any more changes, though, until 3 days have passed. It takes that long, to see what 1 unit or the amount you decreased by, does.
The warm weather can and usually will affect it, as well. Those kind of lows will generally come at any time. The more active you are, or the longer you are outside and in the sunlight, changes will again have to be made. Eat more carbs, reduce the fast acting, or both. Meal time insulin can be adjusted without waiting three days.
I took the grandsons to ball practice yesterday, and sat in that hot sun for almost three hours. My cgm alarms were going off all night long. That was even with doing more carbs and decreasing the rapid acting insulin.
BTW, you didn't do anything wrong. It's all part of being 'betic.
Trisha
Thank you for the info! I did not realize that it takes 3 days to know how a decrease in the basal insulin will work. I saw a post about the warm weather so I was aware of that, but how do you know if you are just hot or low? Do you test while outside? I was working in the yard yesterday (weeding) and was sweating and hot, when I stood up I got dizzy and thought I stood up too fast, then I started shaking and came in to test. I was at 53. I did bump up my carb intake yesterday and took only 1 unit of my Humalog at dinner, but still had trouble keeping up my numbers.
Even though it's "all part of being betic", it is so fustrating! I really hate feeling like a ping pong ball!
Thank you,
Kelly
Kelly,
When you have to increase the basal again, it will also take 3 days then. I'm hypo-unaware for over 9 years, and I don't know the difference for just hot, hypo, or hyper. That is why I have the cgm, plus I test 20 times each day. My meter and other stuff (including both insulins), are *always* with me, and yes, I test no matter where I am at, even in the yard. Getting dizzy after bending over, is usually from standing up too fast. Be careful there, especially in warm / hot / murderous temps weather, whether inside or outside. One more thing, when I'm gone from the house, even if just in the yard, I have my keep me alive stuff, right there with me, even if it is stuff that needs to be kept cold, like Sunny D. My little 6 pak hard plastic whatever it is container, is right there next to me. Yeah, it's a pain in the arse, but we do whatever we have to do. We all know that ping pong ball feeling!
Do more carbs for awhile. Peanut butter, nuts, a couple of saltines with butter or mayo type stuff, even 1/2 cup of real ice cream, will help to keep you more stable.
After the three full days are up, see what is happening then. You still may have to decrease another 10% to 20%.
Trisha
Trisha
IDDM (Type 1 Autoimmune) 30 years ~ Currently using MDI & Minimed CGM ~
Check out my diabetes blog!
All brittle means, is that one has great fluctuations, which is pretty much hallmark for Type 1's. Some more so than others.- me
First light brings a new day, new hope, new wisdom, and a chance to start fresh again.- me
~ New Type 1 Info ~ Insulin, Test Strips, Lancets, and Pump Supplies Help ~ Kidney Damage Info ~
Re: Discourage d!!
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04-18-2012 11:41 PM
Kelly - First and foremost, you must embrace "the ping pong ball"....you ARE the ping pong ball.... you FEEL the ping pong ball.... okay, you hate me now; BUT... it is important to understand that this is how we live. Just as Vanpires must accept the fact that the only way they survive is to suck the life-blood from the innocent, we must accept that our blood sugars rise and fall without our consent... and all we can do is respond. Stay the course... that is, keep responding. Often we need help; I myself lived for about 22 yrs on my own, dealing with whatever my idiot endocrine system threw my way. Then I married, and my wife (who knew what she was "buying into") and I have dealt with my disease since. Next... be careful not to attribute everything to your diabetes. A few years ago, I showed signs of brain tumor; memory screw-ups, direction issues; nothing major. I had a seizure at work. Since I was diabetic, the docs at the hospital assumed it was that. Then, several months later, I had another seizure; different hospital and docs, and they looked further... and found the brain tumor.
My point, essentially, is that we can deal with the diabetes; and we need to stay vigilant to other possible issues. BUT... while it's a pain in the tuckus, diabetes can be managed. And if we accept and embrace the LOTG... (Laws Of The Game) .... we can make them work for us. And keep in mind,,,, the LOTG are always changeing, based upon our ageing. What worked for me when I was 20, doesn't now. What worked for me when I was 40, doesn't now. As a matter of fact, what worked for me when I was 55, doesn't now... and I'm only 57. Presently, I'm experiencing BG swings that don't make sense based upon my past experiences. As my old skydiving instructor used to like to say, "It's a Heads-Up Sport"; modified, I see that as meaning, we diabetics have to keep adjusting to the disease.
Hang in, and best of Luck...
w.
MDI; 46u Lantus Basal


